The objective of this study was to develop a web-based, shared decision-making (SDM) tool
for helping patients with breast cancer make decisions on fertility preservation.

Developing a Web-based Shared Decision-making Tool for Fertility Preservation

Breast Neoplasm Female

Background: The pregnancy rate after cancer treatment for female survivors is lower than
that of the general population. Future infertility is a significant concern for patients
with breast cancer and is associated with a poor quality of life. Reproductive- age
patients with breast cancer have safe options when choosing the type of fertility
preservation method to be applied. Better information and support resources aimed at
women to support their decision making are needed.

Objective: The objective of this study was to develop a web-based, shared decision-making
(SDM) tool for helping patients with breast cancer make decisions on fertility
preservation.

Methods: We used the action research cycle of observing, reflecting, planning, and acting
to develop a web-based SDM tool. The following four phrases were applied: (1) Observe and
reflect: Collect and analyze the decision-making experiences of patients and health care
providers; (2) Reflect and plan: Apply the initial results to create a paper design and
modify the content; (3) Plan and act: Brainstorm about the web pages, and modify the
content; (4) Act and observe: Evaluate the effectiveness, and refine the website SDM.
Interviews, group meetings, and constant dialogue were conducted between the various
participants at each step. The effectiveness was evaluated using the Preparation for
Decision-Making (prepDM) scale.

a web-based shared decision-making tool

Developing a Web-based Shared Decision-making Tool for Fertility Preservation Among Reproductive-age Women With Breast Cancer: An Action Research Approach

We evaluated the effectiveness of the Preparation for Decision-Making (prepDM) scale.
Both patients and health care providers were invited to answer 10 questions by responding
with a 5-point Likert scale rating (from 1 to 5). A higher score indicated greater agree
with the effect.

Mackay Medical College

Each part of the website page was assessed for comprehensibility and usability by
patients. Health care providers were asked to assess the acceptability of the website. A
5-point Likert scale was used for patient and health care provider ratings for each item.
If the score were less than 3, then we would modify the website content based on the user
feedback from patients and health care providers

Developing a Web-based Shared Decision-making Tool for Fertility Preservation

About this trial

Study ID

Status

Type

Phase

Placebo

Accepting

Trial Timing

What is this trial about?

What are the participation requirements?